Nos amis pierrots!

Nos amis pierrots!

Article paru dans le huffingtsonpost.fr le 27/11/2015. Ecrit par Joëlle Guillais, romancière.

Hissée aux grilles du jardin du Luxembourg comme la victoire de Samothrace, Oriane lance le départ du Pierrothon 2015. Deux cents personnes toutes solidaires s’élancent alors sous le soleil hivernal pour transformer la vie des enfants nés du mauvais côté de la rue et qu’on appelle des autistes.

autism
Au départ de la course. Crédits: Camille de Foucauld
Parce que rien n’est prévu, ni adapté pour ces enfants démunis et “bizarres” qui, un jour, deviennent des adultes.

Antoine, Henri, Paul, Jean, Olivier, Philippe, Achille, Viviane, Sandrine, Claire, Sonia, Odile, Isabelle, Virginie, Héloise, et tous les autres de l’association Le chemin de Pierre ont décidé de courir pour alerter l’opinion publique et changer le monde. Alors on court, on marche, on avance et chaque foulée, chaque pas, chaque respiration, chaque effort comptent.

autism Crédits : Camille de Foucauld
Les Pierrots s’échauffent, se réchauffent et tiennent le rythme dans les allées du Luxembourg où les Parisiens se décrassent de la pollution et des horreurs de ce maudit vendredi 13. Et pourtant, il fait vraiment très froid, “même que ça caille”, dit Marie-Sophie venue soutenir cette course de fond au nom du devoir que nous avons d’offrir à chacun la possibilité de vivre au mieux.

Des supporters encouragent ceux qui courent. Aucun contrôle antidopage n’est effectué sinon il faudrait stopper la course vu que nos amis Pierrots sont tous shootés à l’espoir. Et prêts à tout pour que l’Etat sorte de l’inertie actuelle et travaille aux côtés de ces associations pour ensemble, créer des lieux de vie humains et chaleureux, adaptés aux besoins spécifiques de ces jeunes. 

Certains Pierrots transpirent vraiment. Pierre ne lâche pas son père qui, lui, ne le lâche pas du regard car il ne peut s’autoriser un seul instant d’inattention. Mais les Pierrots veillent. Sans eux, Pierre n’aurait pas pu suivre la méthode des trois i (intense, individuelle, interactive), qui lui a permis d’intégrer un institut malheureusement situé en Belgique. Sans eux, les parents de Pierre auraient sûrement craqué. Sans eux, le futur de Pierre ne serait qu’un champ d’épines à l’horizon.

father autism Pierre et son père. Crédits : Camille de Foucauld.
La solidarité a tout changé. Et elle a joué dans les deux sens. A sa façon, Pierre rend ce qu’on lui donne. Preuve que la solidarité, c’est la réciprocité et non la charité. Pierre “nous donne ce qu’on n’a pas”, dit Astrid. “Il remet le curseur de nos interrogations existentielles au bon endroit”, affirme Philippe. Claire, pharmacienne, mère de quatre enfants explique qu’elle est devenue “Pierrote” parce qu’elle a la chance de penser à l’épanouissement quotidien de ses enfants, et qu’elle n’accepte pas que d’autres mères n’aient le choix de rien.

L’activisme bon enfant des Pierrots est cependant au cœur d’une bataille citoyenne qu’il faut mener chaque jour car la démocratie n’est pas donnée à vie, elle s’acquière à chaque instant. Le Pierrothon et ses deux cents activistes illustre la nécessité de bouger et d’agir en se réunissant pour faire évoluer la société vers plus d’humanisme.

Après la course, on distribue les trophées et on annonce enfin la bonne nouvelle: grâce aux efforts de l’association et en partenariat avec deux autres associations (la Maison pour la Vie et la Société Philanthropique), le premier foyer pouvant accueillir sept adultes, dont Pierre, ouvrira en 2016 à Levallois-Perret. C’est une victoire et on trinque avec le Beaujolais nouveau. Non seulement les Pierrots ont surmonté les difficultés administratives et institutionnelles, mais ils ont trouvé les premiers fonds. Même s’il manque encore beaucoup d’argent, c’est le début de quelque chose.

C’est un succès, certes remarquable, mais insuffisant car le nombre des autistes croît chaque année. La HAS (haute autorité de santé), a estimé qu’un nouveau-né sur 100 est concerné par les TSA (troubles du spectre autistique).

Alors courons, marchons. De Gandhi à Martin Luther King, les marches ont pu changer le cours de l’Histoire. D’ailleurs, ce n’est peut-être pas un hasard si le Pierrothon a lieu devant le Sénat. Les sénateurs vont entendre le message, ils vont réveiller les députés qui vont sonner à la porte du Président de tous les Français pour que Pierre, ses potes et ses potesses et leurs familles aient le droit de vivre comme les autres.

autism Pierre et son frère. Crédits : Camille de Foucauld.

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